A new survey conducted by patient charity, Crohn’s and Colitis UK, has found that 100,000 patients in the UK with Inflammatory Bowel Disease (IBD) don’t have access to adequate care. IBD Nurses are instrumental in improving the quality of life for patients with IBD as well as helping to cut significant costs to the NHS, yet many health services are not offering the recommended nursing level.
The specialist nurse role provides expert advanced nursing care, being the first point of contact and caring, often during distressing times - coordinating often high cost therapies in a cost effective way - as well as reducing A&E visits, with studies showing that IBD nurses help with a 38% reduction in hospital visits and a 19% reduction in in-patient length of stay. IBD costs the NHS £900 million per year, with the average cost per patient being £3000 per year. These costs are comparable to diabetes or cancer as treatment options can include effective, high cost biological drugs and surgery.
Recent research also revealed that six out of 10 IBD services in hospitals do not currently meet the recommended standard for the number of IBD nurses necessary to deliver the right level of service and support. 80% of survey respondents without access to a specialist nurse did not know they should have access to one – highlighting the information gap that patients need to understand and manage their condition effectively.
Kelly Tolhurst MP said;
“My constituents living with IBD in Rochester and Strood deserve access to the indispensable services and support provided by specialist IBD nurses, particularly as they are proven to improve quality of life. I want to see more specialist IBD nurses locally to ensure that my constituents have access to the crucial care they both need and deserve.”
Isobel Mason, IBD Nursing Development Manager at Crohn’s and Colitis UK added;
“It seems inconceivable that these roles need justifying when there is so much evidence of the contribution specialist nurses bring to patient care. More than 100,000 people are not being offered the health support they deserve or is recommended, and many more are struggling to be seen by a service that is under pressure.
“This represents a return to the dark days when one in four specialist nurses were threatened by redundancy and almost half asked to work outside their specialty in more generic role would be a disaster for everyone affected by chronic conditions. More nurses means better care.”
Yesterday, 19 May 2016, was World IBD Day on which Crohn’s and Colitis UK mobilised patients to share the survey findings with their local hospital management, along with their valued personal experiences of the IBD nurse service. The charity is also asking hospital chiefs and IBD teams to work directly with the charity to support the delivery of more IBD nurses locally, as well as working with IBD nurses and Gastroenterologists to provide new resources that can facilitate job and business planning for health service development.
For more information about the More IBD Nurses – Better Care Campaign starting on World IBD Day, please visit www.crohnsandcolitis.org.uk/worldibdday